Prostate Cancer My Butt Hole Hurts

 

Prostate Cancer My Butt Hole Hurts

Disclaimer: Reading this page may kill you, if you follow my advice.

Sometimes, the treatment is worse than the disease. I've had prostate cancer for 17 years, and I just ignored it. I felt that I would eventually die from prostate cancer, knowing that my father died from prostate cancer at the age of 80, but not really. He died of bone radiation that was trying to kill the prostate cancer. After getting the Lupron injection that is required to get radiation, I feel I'm more likely to turn into a pile of mush and bones before I ever die from prostate cancer.

JOHNS HOPKINS Study

• 5-year relative survival rate of nearly 100 percent: Five years after diagnosis, the average prostate cancer patient is about as likely as a man without prostate cancer to still be living. 
• 10-year relative survival rate of 98 percent: Ten years after diagnosis, the average prostate cancer patient is just 2 percent less likely to survive than a man without prostate cancer.
• 15-year relative survival rate of 95 percent: Fifteen years after diagnosis, the average prostate cancer patient is 5 percent less likely to survive than a man without prostate cancer.

 

The radiation treatment at Kaiser Hospital Cancer Center in Dublin, California, with the Varian True-Beam, was painless. You do not feel the radiation beam. The two technicians who treated me were top-notch. The only reason my butt hole hurt was because of the diarrhea. They told me to stay hydrated, and I drink 3-4 bottles of water a day, but I should have drank more than 5-6 bottles of water daily.  

Side effects of radiation: fatigue, headache, and diarrhea. Small price to pay for destroying the prostate cancer cells. Also, no hair loss whatsoever, even on your testicles. 

The only pain I felt was going through the steps to get the radiation treatment, getting the 3 gold seeds implanted in my prostate, just fucking ouch. The two small dot tattoos that were drawn on each butt cheek so the technicians could align the lasers and radiation beam with the dots and gold seeds to destroy the prostate cancer cells. 

The drug  Lupron (leuprolide) is used to control early puberty in young girls, and it is used in prostate cancer cases to send grown adult males back to puberty. It takes the "man" out of men. For me, it removed a massive amount of muscle, and now my wrists at 73 years old are the same size as mine when I was 12 years old. My penis is now just as limp as when I was 12 years old, with pre-puberty and my testicular shrinkage to match pre-puberty. However, I don't remember having hot flashes in pre-puberty.

I understand the importance of getting the Lupron injection to lower my PSA level, but the side effects of Lupron are hard to cope with. In 2007, my PSA level was 4.5. Before I got the Lupron injection in 2024, my PSA level was 38.5. After three months on Lupron, my PSA is now at 0.3.

I had the "Dickless with Tiny Balls" tee-shirts made as a protest vote in getting the Lupron injection.

Probably the best place to learn about the options for prostate cancer is in the waiting room at Kaiser Hospital Cancer Center. After talking to the men in the waiting room, I realized their stories were all different. One man, 50 years old, was there for 22 radiation treatments. However, he did not know what his PSA level was. Another man, 73 years old, who had his prostate removed, was there for 32 radiation treatments with a PSA level of 66 or 6.6. I wasn't exactly sure what he said, except that he said his PSA was really high. Another man, 62 years old, who had his prostate removed, was there for 35 radiation treatments, and his PSA level was 5.1.  

Note: All three men said they did not have massive muscle loss from the Lupron injection. 

Another radiation cancer patient, 77 years old, said his prostrate cancer was probably caused by Agent Orange from the Vietnam War, and the prostate cancer had spread to his tailbone. No other details on his PSA level.

My friend Dywayne in Tennessee, 70 years old, had his prostate removed when he was 72 years old. For the first year after the prostate was removed, he felt great. However, two years later, he died. No idea about his PSA level before and after or whether or not his cancer spread outside of his prostate. 

Today, I found out that a windsurfing buddy from 30 years ago, Jim, 70 years old , also had his prostate cancer cured at that radiation treatment center at Kaiser Hospital Cancer Center in Dublin, California. I do not have any details on his PSA level. However, I remember Jim saying how massive my forearms were when we were windsurfing. He would be applauded by the small size of my forearms today.

Me windsurfing with Jim at Bethany Reservoir State Recreation Area about 1994

I almost feel like a wimp. I only had five radiation treatments on the clinical trial GU009, but at a much higher radiation dosage, and I still have my prostate. Back in 2008, a doctor wanted to remove my prostate when my PSA level was at 6.5, and I declined. Before you make any decisions on your prostate cancer, find out if the prostate cancer has spread outside of your prostate. After 17 years of having prostate cancer, the prostate cancer had not spread outside of my prostate.  

When you have your prostate removed, you will still need to get the Lupron injection and radiation. To me, that's the worst-case scenario.

Make all of your decisions on these four things:

1: PSA Level

2: Testosterone Level

3: Has the prostate cancer spread outside of your prostate?  

4: Grade of Cancer-> Gleason grading system

For some men who have prostate cancer that has spread outside of the prostate, with a PSA level of 5.0 could be deadly. If the prostate cancer had not spread outside of the prostate, then, like me, I felt I could have had a PSA level of 50 and been just fine by just doing "nothing." But maybe not. With a Gleason score 4+4, aggressive cancer, It was time to get treatment.

My father was diagnosed with prostate cancer at the age of 62 in 1990. At 65 years old, he got radiation seeds implanted in his prostate. That was a disaster. It didn't cure the prostate cancer, and he was really sick for a year. Then, at the age of 70, he got chemotherapy and probably the Luprin injection. After the treatment, he hired a personal trainer and started working out with weights. He was in excellent shape after he began working out. At the age of 77, he got more chemotherapy. Then, more experimental chemotherapy treatments until the age of 80.  I don't know if his prostate cancer spread outside the prostate when he was 65, and I don't know his PSA level. 

A relative of my fathers, who was a board member of the Prostate Cancer Foundation, told my father the best thing he could have done was " nothing." But it was advice that was too little and too late after all of his chemotherapy.

Prostate cancer

Side effects of getting the Lupron injection.

Massive muscle loss.

Massive bone density loss.

Massive weight gain.

Ruptured chest muscles.

The exorcist syndrome.

Constant nagging syndrome, according to my wife

Felt like plastic worms injected into each butt muscle.

Hot flashes. Lots of hot flashes.

Headaches

Suicidal thoughts

Murderous thoughts

Bone pain

Constant pain.

Constant Fatigue

Respiratory problems

Spinal cord compression

Blurred vision

Dizziness

Constant stomach aches, probably from the muscle mass loss, turning into belly fat.

Massive muscle loss in my butt. 

Massive muscle loss in my calves. I can't walk more than 100 yards without my calves hurting.

Massive muscle loss in my thighs. 

Massive muscle loss in my back.  My lower rib cage now hurts.

Massive muscle loss in my chest. 

Massive muscle loss in my forearms. 

Massive muscle loss in my biceps. 

And a new watermelon belly full of fat. After being on Lupron for three months, I feel like I have lost at least 10 pounds of muscle and added 10 pounds of fat to my belly.

I had Stage 1 Prostate Cancer: The cancer had not spread outside of the prostate.

Anti-hormonal treatment --> Lupron injection and taking Bicalutamide 50 mg tablets daily.

Anti-hormonal treatment works by reducing or blocking the amount of testosterone in the body, a male hormone that prostate cancer often depends on to grow.

The Bicalutamide, 50 mg tablets, have lowered my testosterone to <20, which basically means my testosterone is zero. Testosterone helps boys develop male features like body and facial hair, deeper voice, and muscle strength during puberty. Then, Bicalutamide lowers your testosterone to pre-puberty levels.

I was 17 years old, lifting weights for football training with my testosterone, probably at 800.

I am 18 years old, graduating from high school with my testosterone, probably at 825.

I was 18 years old, surfing in San Diego, California, with my testosterone probably at 850.

I am 21 years old, in Pikes Peak, Colorado, with my testosterone probably at 825.

I am 27 years old and waterskiing in Kauai, Hawaii, with my testosterone probably at 800.

I am 32 years old, with my testosterone probably at 750.

My father, son Erik, and I windsurfing on the Oregon coast at the age of 46, with my testosterone probably at 600.

Note: My father would be 69 in this photo, just before he started chemotherapy, and my son Erik is now a third-generation carpenter. 

Tours France, 2021, at 70 years old, with my testosterone probably at 350.

Visiting the Musée - Librarie du in Tours France to see the compagnons masterpieces.

Advanced Stereotomy Certificate, 2023, at 72 years old, with my testosterone at 270.

Note: I'm basing my testosterone levels on:

1: Overall energy

2: Strength

3: Muscel recovery

So, the big question is, "Should you get radiation treatments for your prostate cancer".  With my PSA level at 38.5, I was concerned that the prostate cancer would spread to my tailbone and hurt like hell. Then there was the doctor saying he would recommend getting treatment for his father and my wife, nagging me about getting my prostate cancer treated because she got her breast cancer treated. The only regret I have is getting the Lupron injection and taking Bicalutamide 50 mg tablets daily. However, without Lupron and Bicalutamide, the radiation is ineffective. Almost a catch-22 scenario. And remember, the radiation treatment is painless; the prostate cancer in the tailbone is not. 

So, after my 5th radiation treatment, technically, my prostate cancer is cured. As long as my PSA < 1 and my testosterone level is pre-pubrity. Without testosterone, prostate cancer has nothing to feed on. Also, I was able to stop taking the Bicalutamide 50 mg tablets after the last radiation treatment. However, I'm still supposed to get three more Lupron injections every 6 months.  

Dickless with Tiny Balls for Pre-Puberty Prostate Cancer Victims

I'll update this page every three months after I get my blood test done for the PSA level. To see if I'm still cancer-free.

Oh yeah, according to my friend Nathan's mother, stay away from the salami.